Genetic Governance: Health, Risk and Ethics in a Biotech Era

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Edition: 1st
Format: Nonspecific Binding
Pub. Date: 2005-09-26
Publisher(s): Routledge
List Price: $57.95

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Summary

How is genetic research governed? And how will the new genetics govern our lives? There is much interest in the potential transformation of life and new therapeutic opportunities brought about by the so-called genetic revolution. Genetics is increasingly involved in processes of governance that determine the way we see our bodies, ourselves and our environments. Controversy and ethical debate surrounds the use of techniques of human cloning, stem cell research and the use of national genetic databases or 'bio-banks'. There has been little reflection on the effects of this new genetic knowledge and the changes in practice that are currently impacting on our lives. Genetic Governancecontains contributions from key international researchers who examine the broader issues of genetic debates, look at how prediction and risk assessment is being changed in the arenas of health, medicine and reproduction, and bring new insights on the dangers of surveillance, regulation and increasedinequality. This book considers the implications of developments in genetics for contemporary liberal governance, as well as for the future of healthcare and public health. This book will be invaluable reading for academics and students in health studies, public health, medical ethics, medical sociology and governance.

Table of Contents

List of contributorsp. vii
Acknowledgementsp. ix
Genetics and governance: an introductionp. 1
Ethics, risk and governancep. 29
Ethics of clinical genetics: the spirit of the profession and trials of suitability from 1970 to 2000p. 31
Risk management and ethics in high-tech antenatal care: the Finnish experiencep. 47
The first genetic screening in Finland: its execution, evaluation and some possible implications for liberal governmentp. 65
Choice as responsibility: genetic testing as citizenship through familial obligation and the management of riskp. 79
Risk, population and identityp. 93
From eugenics to the government of genetic risksp. 95
The sociology of the new genetics: conceptualizing the links between reproduction, gender and bodiesp. 107
Whose right to choose? The new genetics, prenatal testing and people with learning difficultiesp. 121
'New' genetics meets the old underclass: findings from a study of genetic outreach services in rural Kentuckyp. 137
Knowledge, governance and the futurep. 153
Public health and the 'new genetics': balancing individual and collective outcomesp. 155
More than code: from genetic reductionism to complex biological systemsp. 171
Emerging forms of governance in genomics and post-genomics: structures, trends, perspectivesp. 189
Table of Contents provided by Ingram. All Rights Reserved.

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